3Published on 28/01/2022 Paris, Saturday January 29, 2022 - The recent remarks of the candidate of the Reconquest party, Eric Zemmour, concerning the inclusion of children with disabilities in school have mainly aroused indignation. However, beyond their provocative character, these declarations recalled the limits of the inclusive school. Patrick Sadoun, founding president of the RassemblementPour une Approche des Autismes Humaniste et Plurielle and father of a child with autism, discusses them in this column published on his website and which he forwarded to the JIM for our readers. also launches an appeal to the candidates for the presidential election so that the fate of disabled children goes beyond mere declarations of intent. By Patrick Sadoun* Autism, and disability in general, have never been an election campaign issue. Twelve million people are concerned but, until then, that was not enough to interest the candidates. And then suddenly, miracle, for a few days everyone has been talking about it and seems to be passionate about this question. Let's face it, we owe this sudden enthusiasm to Eric Zemmour, to his incomparable talent for putting his feet in the dish and putting on the table the subjects that annoy , those that we are used to hiding under the rug.While the word "inclusion" was absent from the 2012 HAS recommendations for children and adolescents with autism, it has become, in a few years, the key word of disability policy and even politics at all. Learning that your child is disabled is a very violent trauma that takes a long time to overcome. My autistic son is 33 years old and I still dream that he speaks and behaves normally, that we made a mistake, that he is not autistic and that everything is fine. When I meet young people his age who are in a relationship, kissing, smiling, it sometimes still hurts me to think that he will not know this simple happiness. So I understand perfectly that all parents of young children with disabilities absolutely want to that theirs goes to the ordinary school, that he follows the same path as the other children and that he has the same life. And often it works, it's much more difficult than for other children, but many (especially those with Aspergers and those with physical or mental disabilities) manage to endure the constraints of class and study. For them the law of 2005, which made schooling in an ordinary environment an enforceable right, was an inestimable chance. We were not so lucky. Would we have seized it? I do not know. At five years old our son was terrified by noises, he wouldn't let others come near, he couldn't stand contact with clothes, he had no notion of emptiness and danger, he spent hours hitting his back against a wall or a radiator, he let out shrill screams that tore our eardrums, and of course he was not clean, playing with his excrement and covering the walls with it. The reality of autism is also that, politicians and journalists do not realize it. Would school have been beneficial for him? I have difficulty believing it. Being too close to others, ringing bells, the hustle and bustle of recess, would have put him through real hell. He was in no condition to learn anything, with or without the support of an AESH. He had many other problems: having the feeling of existing, perceiving this fragmented body as his own, no longer being invaded by all his internal and external perceptions, no longer feeling the other, his presence, his gaze, his words, like unbearable intrusions. The school is unable to provide a child with severe autism with the care he needs. It's not his function. And other children also have the right to be able to study without being constantly disturbed. The sister and brother of our autistic son had the right to forget for a moment at school what they experienced daily at home.
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— the tokyo files Sat Jun 05 03:31:15 +0000 2021
More than 8,000 French people with disabilities in Belgian establishments!
When we refuse to take these realities into account, it always ends badly, most often with complaints from other parents, distraught teachers despite all their good will and ultimately brutal exclusion. There is then no longer any alternative solution because all the places in the IME are already taken and the waiting lists are very long. This is how families are forced into exile in Belgium where, alongside excellent institutions, very lucrative private companies welcome them with open arms. Belgians call them “French factories”. More than 6,000 young adults with mental disabilities are kept in institutions for children due to a lack of places in establishments for adults. They are thus blocking the possibility of welcoming more than 6,000 children for whom school inclusion in their neighborhood school has proven to be a dead end. Thousands of desperate families are still without a satisfactory solution despite all the promises and must keep their child at home. , sometimes adult for a long time.Five commitments submitted to candidates
So we put the question to all the candidates in the presidential election: if the theme of inclusive education is not for you a simple occasion for electoral controversy, if you are really interested in the fate of our children, you solemnly undertake, at the if you are elected, to:1. Create in 5 years the 15,000 places for dependent adults who are sorely lacking?2. Create all the necessary AESH positions so that each disabled child for whom it is necessary can have them from kindergarten to university.3. Mandate an independent audit firm to carry out, in consultation with the Ministry of Education and user and professional associations, an evaluation of the school inclusion policy: - What percentage of disabled children admitted to kindergarten and primary school acquire the level required to enter 6th grade? Refine this assessment according to the different disabilities and their severity. - What are the prerequisites for schooling in an ordinary environment to be beneficial to a child? - How to acquire them when the child does not have them ? With which gateways?- What difficulties do children with disabilities, their families, teachers and other children face as a result of inclusion?- What does meeting with children with disabilities bring to other children?- How to reconcile the essential mission of school of transmission of knowledge with the specific difficulties of different disabilities?4. Mandate a team of renowned epidemiologists to carry out a major epidemiological survey on autism:- How did we go from a prevalence of 1 in 3000 to 1 percent?- What is the real number of autists in France?- What are the the different clinical pictures grouped under the common diagnosis of autism spectrum disorders? - How many people in each of these clinical pictures?5. Upgrading the professions of helping dependent people and, to begin with, extending the advantages of the Ségur de la santé to medical and social professionals (+ €183 per month). At the start of 2022, we therefore hope that all candidates for the presidential election make credible their concern for the well-being of people with disabilities and all those who take care of them by solemnly committing to these 5 points.* Founding President of the Rassemblement Pour une Approche des Autismes Humaniste et PlurielleCopyright © http://www.jim.fr
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